Understanding the deficiencies is also facing their very human contradictions – Jairo Marques

There is a question inherent in the debate of affirmation of people with disabilities, which contains some contradictions: can anyone defend that a physical, sensory or intellectual condition is adopted voluntarily? Can someone be exposed to the onset of a loss that will affect the functioning of their own body, mind or abilities by carelessness or by their own will?

For example, it’s like thinking about cutting your own leg to say that it’s okay to wear a prosthesis, leaving yourself exposed to elements that lead to deafness because you defend the cause of those who don’t listen or don’t vaccinate themselves against some debilitating disease because you don’t even care what happens and assume your actions.

Thinking about putting yourself in an uncontrollable situation, whose consequences can be much more serious than imagined, refers to a complete absurdity and can expose the living being to pain, total madness and even death.

Knowing the effects of a disability is both for the defense of a way of being, of interacting and of being alive, as well as for the knowledge that no one needs to go through the same experience to understand it, respect it and defend other ways of being in the world.

But, going a little deeper in this debate, there are still challenges of understanding around the thinking of those who choose, for example, not to adhere to technology because it would confront the acceptance of a way of being and feeling happy in the way they are. It’s.

More embers? Let’s imagine a person who carries within him a genetic inheritance of a rare syndrome and decides to have a child in a natural way, without genetic manipulation, because, for him, passing on its essence, in every way, is a right and represents a totally full form to say that it embraces human multiplicity.

On the other hand, let us suppose that someone without any sign of alteration in their genes becomes aware that they are generating an embryo that has a marked difference in any way and chooses, defends and celebrates the arrival of the baby with all its peculiar characteristics.

The strength of the identity of people with disabilities comes from the fair way of understanding that there are dilemmas that can provoke reflections on this condition, unlike other manifestations of diversity such as race and gender, which assert themselves.

A person with autism or a person with Down syndrome acts, manifests and is the way it is, and society urgently needs to face the unconscious bias of wanting these groups to act as if they had no characteristics that make them be, act, think and see the world in a way out of common sense, and that’s okay!

I don’t need to be like a “walker”, I can consider myself very well in my wheelchair form, but I don’t need to think that this condition should be experienced by others, that others “feel firsthand” my way of acting, of being a citizen and be happy.

In September, a series of dates are celebrated that aim to give more visibility to the demands of the deaf, blind, quadriplegics, cerebral palsies and hundreds of other titles that name differences in the carcass, the maw and the sensations. We all win by deepening debates that help to include more the other and their so human contradictions.




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